Showing posts with label emotions. Show all posts
Showing posts with label emotions. Show all posts
Monday, February 28, 2011
The Long and Winding Road
Those of you who are frequent readers of this post know I like to exercise. Makes me feel good, it slowly gets me back to where I was before all of this. Before cancer, before side effects, before I knew so many medical terms one of my doctors asked me if I was in the medical industry, unfortunately, no I am just a student of my disease.
So I have decided to try to take up running again. I haven't run since high school when I ran cross country. I lettered in that. Still have the varsity jacket, and it still fits.
Running will definitely take me out of my comfort zone. I haven't run since high school because of my knees, and well, quite honestly running never really appealled to me, probably because of the growing pains I had with my knees. I only ran the one year for cross country, and after I lettered I guess I wasn't that interested in it.
In high school I wasn't much of an athlete. Didn't participate in team sports after cross country in 9th grade I believe. I even recall that many of my classmates were on diets, drinking diet coke and worrying about their weight. I never did that. Wasn't my thing.
Back to me deciding to run. I have my reservations wondering if I will enjoy it. I know it will be hard at first. Different than what I am used to doing. In the summer I love to ride my bike on the local bike path. Nothing like you and your bike and you and the serenity of nature.
I have a friend who is going to go running with me. Train me I guess. She is one of the pilates instructors from pilates midwest, the pilates studio where I did the pink ribbon program and where I currently take pilates classes. I don't even know if that is the right terminology. All I know is I enjoy going there and she enjoys kicking my butt.
So we did a 5k walk this past Saturday, my friend the pilates instructor, Jan and I walked,while the other pilates instructor ran. It was cold, about 20 degrees outside. It was good to get outside in the fresh air.
But of course we know, as cancer survivors, nothing is ever easy.
I have osteopenia. I need to do weight bearing exercises to keep the osteoporosis away. So I thought the walk would be a good addition to the pilates and hockey that I do currently.
The next day I noticed my neuropathy flaring up.
So let me get this straight.
I am trying to get back into shape with the help of one of my friends, and the walk causes a side effect?
The neuropathy doesn't really hurt. My foot is numb. Its more of an annoyance, but I would rather it not get back to the point of shooting pain going all the way up my leg to my knee.
I am hoping that running will cause a break through and it will go away permanently, and not have it return doing something that I want to do.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Labels:
emotions,
exercise,
healing,
health,
healthy,
hockey,
hope,
livestrong,
neuropathy,
pilates midwest,
pink ribbon program,
positivity,
stupid cancer,
survivor,
survivorship
Thursday, February 17, 2011
Getting back on track
As a cancer survivor I am used to the waiting game. Waiting for doc appointments, waiting for results from scans. Waiting, waiting, waiting. I wonder how much of my cancer experience I have spent waiting. Probably over half of it.
I am used to waiting for other people, but not for myself.
I am used to going all out all the time. When I had two jobs I would start my day at 5am as a server finish up around noon or 2pm, get to the radio station, do some voice tracking, go to the gym, then maybe head back to the radio station to work on a Tigers or a Red Wings game. A 5am-10pm day. I would do this about 2 or 3 times a week.
I am 3 years into my survivorship, and I am still waiting to be able to get back to that level of energy. Don't get me wrong, I do have energy. I still get up early, my work day ends around noon -2pm. I do pilates twice a week, its winter so I play hockey, but I am still not back to what I was before. I have to nap during the day to be able to do what I need to do.
Its hard waiting for me. Its harder not knowing if I will ever get back to where I was before.
I am close.
But not quite there.
This is one of the things they don't tell you about when you have cancer.
This is just one of the many charming aspects of survivorship that I have to deal with on a daily basis. Just one of the many thoughts that go through my head wondering when I will be back to me, or as close to it as I possibly can be with everything that I have been through.
There are some friends of mine that I haven't seen since I moved from California. Since I was diagnosed. Since I had cancer.
Sometimes I wonder how much I have changed and if they will even recognize me. The Me that they knew.
Its a scary thought to think that they wont.
Henry Wadsworth Longfellow said "All things come round to him who will but wait."
I hope he was right.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
I am used to waiting for other people, but not for myself.
I am used to going all out all the time. When I had two jobs I would start my day at 5am as a server finish up around noon or 2pm, get to the radio station, do some voice tracking, go to the gym, then maybe head back to the radio station to work on a Tigers or a Red Wings game. A 5am-10pm day. I would do this about 2 or 3 times a week.
I am 3 years into my survivorship, and I am still waiting to be able to get back to that level of energy. Don't get me wrong, I do have energy. I still get up early, my work day ends around noon -2pm. I do pilates twice a week, its winter so I play hockey, but I am still not back to what I was before. I have to nap during the day to be able to do what I need to do.
Its hard waiting for me. Its harder not knowing if I will ever get back to where I was before.
I am close.
But not quite there.
This is one of the things they don't tell you about when you have cancer.
This is just one of the many charming aspects of survivorship that I have to deal with on a daily basis. Just one of the many thoughts that go through my head wondering when I will be back to me, or as close to it as I possibly can be with everything that I have been through.
There are some friends of mine that I haven't seen since I moved from California. Since I was diagnosed. Since I had cancer.
Sometimes I wonder how much I have changed and if they will even recognize me. The Me that they knew.
Its a scary thought to think that they wont.
Henry Wadsworth Longfellow said "All things come round to him who will but wait."
I hope he was right.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Sunday, February 6, 2011
Happy Happy Joy Joy
I have been feeling great for quite some time now. I know it has a lot to do with playing hockey and pilates. Exercise raises endorphin levels. Endorphins make you feel good. We all know that.
I think a lot of it has to do with not only working out but knowing that I am getting back to my old self. Not that I can ever get back exactly to the way I was I know that. Sometimes that is a hard reality to face. But very close.
I still remember telling my hockey team I had cancer. I still remember what it feels like to be going through treatment and not being able to do anything. To be tired and weak. To feel shitty and feel like someone else.
Cancer takes so much from you. So does the chemo. It can strip away feeling like the person you were, to a person you don't even know. Makes everything about you feel like someone else, down to the very core of your soul. It took a few years of doing things that I love doing away from me. I When I was going through treatment I would look forward to these days and hope that they would come quickly. Now I look back and am glad that it is a distant light in the tunnel behind.
Like I said I am feeling good. I didn't realize how bad I felt until recently when I realized I felt so good.
I felt so bad for so long I didn't know the difference.
Now I feel so great I don't want it to end. I am hoping it wont.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Labels:
cancer advocacy,
emotions,
exercise,
healthy,
hockey,
hope,
positivity,
stupid cancer
Saturday, January 15, 2011
Relaxed....
Its been a while since I have written. Not really sure why that is. I have written a couple of guest blog posts for some friends of mine, maybe that is why, I am not one of those writers who can just write at the drop of a hat, I have to be inspired. Certain things have happened these past two weeks to inspire me.
I went to a chiropractor on the advice or my pilates instructors (yes I have two of them, and their styles are both very different and both very good) I have had pain in my shoulder for quite some time, and it would always get worse at night, nothing like trying to get to sleep in pain.
Now I have been skeptical of chiropractors because of what my fiance Doug had gone through in California. Long story short Doug was scheduled for surgery for his shoulder and the chiropractor, who had no permission to practice in the hospital where Doug was, wanted to give him an adjustment the day of his surgery!! Needless to say the chiropractor didn't, and he was kicked out of the hospital room.
So yes I was skeptical, but my friends said he would help. So I went. I had the xrays taken. There I saw my crooked spine and my straight neck,
I have scoliosis, that I knew, and apparently the curvature in your neck is supposed to be at 40%.
Mine is at 10%.
No wonder my back and neck hurt, oh and I had a rib out of place. Don't ask me how the hell that happened, but it was out of place. Another reason for the pain. The chiropractor told me that he was different than the last chiro I saw (he was in the same town, didn't really remember much of what he did, chemobrain, and didn't have problems with him, just got down to being a financial issue to go to him)
So the chiro did the adjustments. I wasn't expecting to hear the snap crackle pop of my spine and neck.
It was amazing.
For the first time, in I can't remember when, I had no pain. I had an amazing massage the week before, I was actually able to relax during the massage.
I told Lynn, my friend, the massage therapist, "Congratulations, you have done something that no one else has done in three years."
I was able to relax.
The chiropractor said I would probably sleep better than I have in a while. I went home and took a nap. My hours changed at work so I have to be at work at 5:30am, so whenever I can grab a nap I will.
The only word I can describe how I felt was euphoric. I felt so good it was almost hard to fall asleep.
Sleep is that golden chain that ties health and our bodies together. ~ Thomas Dekker
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Friday, January 7, 2011
Happy New Year
Recorded this video on New Years Eve. Why I do what I do.
Sunday, December 26, 2010
Reflections
There are 5 days left of 2010. I have to say it has been a long emotional year for me. Lots of good things have happened for me professionally. This has been a great year pr wise for The Cancer Warrior.
I was one of a few featured survivors in a Chicago Tribune/LA Times article about cancer survivors (Thats me before Peggy Fleming and the president of Harvard with my photo above the fold, doesn't show it only though)
A Positive Ripple Effect magazine featured an article I had written.
I was featured on several radio shows, including The Stupid Cancer Show. Matt Zachary who founded Stupid Cancer is not only a good friend but someone I admire. I was blogging on my own blog and was also blogging on The Stupid Cancer Blog. I am grateful to him for helping me get my start.
One of the most amazing things that has happened to me this year is being asked to speak at The Cancer Treatment Centers of America Empowerment Rally. Out of all the cancer survivors I was picked with 4 other survivors from the US to talk about patient empowerment. I can remember the night before thinking that there will be a knock on the door and someone from CTCA would say uh sorry we made a mistake, here is a ticket for your flight home.
I have met some amazing survivors in person and online. I have an amazing group of people who have had all kinds of different cancers, all who share the same experience, and who all want the same thing, the end of cancer. I know I can email, call, tweet, or facebook any of my friends at any time if I need guidance or help for myself or someone else.
I have started new ventures in social media, helping others maintain their facebook pages. Sounds easy, I know. Someone asked me people actually pay you for that? The answer is yes, they do. Businesses and people get busy with their lives and need people to help them. That is what I do.
One of the things I like to do is pay it forward, either to my friends by some simple gesture, but mostly to people I haven't met. Its an easy thing to do, and it takes minimal effort. Someone paid it forward to me this year. They created my amazing new website When my friend said he would do my website pro bono I never expected the extent of how much he has done. I was blown away. Honestly when I first saw it I almost started to cry. I was just expecting nothing more than the go daddy parked site I had.
Celebrated 3 years of survivorship. Nothing is better than hearing all clear on blood tests, scans and physicals. Nothing.
With all the amazing highs there were many lows as well.
September 15th.
Just 3 days before I was to celebrate my 3 year cancerversary I lost a good friend to cancer.
Donald Wilhelm
He was such an inspiration to many, and I am grateful I got to meet him and call him my friend. Even now as I am writing this the tears are flowing. Knowing that just 4 months before he passed I posted an interview of him here.
And I saw him just 3 months before he passed away at the Pancake House with his wife Amy. I am grateful I got to meet her and that Doug got to meet him.
The photo below taken on Memorial Day weekend will always be one of my favorites.
Seemed like after Don passed away everything just sent me into a tailspin of depression. Even with the pink ribbon program that I started at Pilates Midwest and the Pilates helping me to relax the cancer world that I was in was rocked one week with Don's memorial service, a friends recurrance and not one but two deaths because of cancer.
I have to say the last three months of this year have been some of the hardest I have ever dealt with. Dealing with those passings, financial hardships, and just life in general got to me.
It was rough.
Almost as rough as when I was going through treatment.
I can honestly say without prescription medications, family, and good friends being there for me I don't think I would have made it through these past 3 months as much as I did, and for you I am eternally grateful.
5 days until the ball drops and its 2011.
I have faith that 2011 will be better than 2010.
Faith consists in believing when it is beyond the power of reason to believe. ~ Voltaire
Mel is the producer/co~host of The Vic McCarty Show. Listen live Monday~Friday 10am-noon eastern on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand now and also available on Itunes
Friday, December 3, 2010
Road Trippin'
I had 2 doctors visits in one week. That is unusual for me lately. Both were routine follow ups from oncology and radiation oncology. I didn't have the usual scanxiety that I usually have. I had a mammogram just a month before and everything was normal, so I naturally assumed that neither doc would find any problems.
I like to drive. Everywhere. I drive more than Doug. When I lived in LA that was part of my job, driving to set, from editorial to one of the post houses, mix stages etc. Most people get totally stressed in rush hour on the 101, the Hollywood Freeway. I find it relaxing. Yeah your not moving, but you can clear your mind and focus.
I would always drive to my doctor appointments, chemo, radiation, I think I even drove to surgery. Most of the time after chemo I wasn't in any shape to drive, the drugs would knock me out (and no I didn't drive after my lumpectomy surgery, but apparently I called several people to tell them I was ok while I was still heavily medicated. Wonder if that audio is still around.)
Monday I drove to the oncologist. Driving to the hospital for what I knew would be a routine follow up brought a flood of memories to me. Why I don't know. I thought about the routine I would have for the day. I would get my blood drawn out of my port at about 9am. Hated that goddamn port. Looked like a fucking bottlecap under my skin, and it would hurt sometimes when I moved a certain way. Go to work and produce The Vic McCarty Show for 2 hours, drive home. Put lidocaine on my port and cover it with plastic wrap so it wouldn't rub off. Lidocaine numbs the area. I would see the oncologist. he would go over my blood counts to make sure I was strong enough to do the chemo, then it was a short walk to the infusion center. There were a couple of times that I forgot to put Lidocaine on my port and when they jabbed the syringe in me for the chemo it hurt like hell for the entire treatment, which lasted anywhere from 1-3 hours, depending upon the meds.
I thought about how much I had been through. Sometimes I can't believe it. Its only been 3 years but it also feels like a lifetime ago. I thought about how much Doug has been there for me. Every chemo, every radiation. During chemo I would fall asleep because of the meds and he would go to the cafeteria to get something to eat for himself. He would come back with Lays potato chips for me. They made me feel better when I was done. I would groggily walk to the exit of the cancer center and Doug would get the car and pull it up so I wouldn't have to walk too far.
During the drive to the doctor I wondered why I wasn't nervous or scared. Was it because I was just too busy with work and advocacy? Maybe I have just gotten to a place where I know I am going to be ok, and as my friend Donald Wilhelm would say "It is what it is."
No its neither one of those things. I don't know why the appointments didn't bother me. I still don't. It makes no sense.
Cancer still affects me. Well the side effects do anyway. The neuropathy that went away now comes and goes. Like I need a fucking reminder that I had cancer. It frustrates me that I still have it. That when sometimes when I am doing pilates I can't feel my toes or part of my foot. Kind of hard to focus on the poses and breathing when you aren't even sure where your foot it. I know its where it should be. I just can't fucking feel it. Frustrating when the instructor asks you to move a part of your foot and you have no clue if you are or not.
And the damn depression.
Of all the side effects I have had I wish I could trade that one for something else, like you used to to with marbles or baseball cards when you were a kid?
Hey I'll trade you depression for insomnia or chemobrain.
Shit. I have both of those too.
Nevermind..
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes
Friday, November 19, 2010
You Like Me, You Really Like Me!!!
Just got an email today from Amy from licensedpracticalnurse.com saying they liked my blog and is featuring it on their website as one of their top breast cancer blogs.
I am honored and humbled by The Cancer Warrior's inclusion in this list.
I hope this means that I am making a difference in cancer survivor's lives.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes
Saturday, November 13, 2010
In Response to NY Times article "Think About Pink"
So the creator of project boobies emailed me a link to a NY Times article recently. About this survivor who was complaining about the pink ribbon on everything. To that I can relate. Everything seemed to have a pink ribbon on it. I get that, in October the ribbon was everywhere. That is the only part of the article I can agree upon.
Paraphrasing, she said that the pink ribbon was on everything and it promoted "awareness."
Then she said this,
"The experience of actual women with cancer, women like Rollin, Black, Ford and Rockefeller — women like me — got lost."
Uh what?
So I put on a Save the Tatas shirt or a Project boobies that takes away from your experience with cancer?
She says "Sassy retail campaigns have sprung up everywhere, purporting to “support the cause.”
Ok so as a writer shouldn't you check facts?
In the photo for the blog I am PROUDLY wearing a projectboobies shirt for a tv interview, one that she was complaining about in the article to be sassy and purporting to "support the cause."
Sorry Ms. Orenstein, it does support the cause.
Have you heard of Kokolulu? A free retreat for cancer survivors in Hawaii. A portion of project boobies proceeds goes to fund the retreat. THE FREE RETREAT.
As for Save The TaTas, a company I am familiar with, a company who, whenever I ask for t shirts for a fundraiser or a group the owner Julie Fikse donates to me without question, has according to their website donated $535,000 towards ending breast cancer.
Sorry that diminishes your battle.
Sorry that Kris Carr, survivor and author of Crazy Sexy Cancer bothers you with her positive message.
Does it diminish the battle of the 52 year old survivor who asked my friend for a save the tatas shirt, knowing that she got it from me? Does it diminish the fact that the doctors didn't give her much time to live.
I say No.
Most of the breast cancer survivors I know are in their 20's and 30's so I would instead of wearing as you would want me to a “I ❤ My 72-Year-Old One-Boobied Granny t shirt instead of the tatas or projectboobies shirt I would wear my I ❤ My 27 yr old friend who is a college student and a young adult breast cancer survivor
Because I do.
And a pink ribbon on toilet paper doesn't diminish the battle or the stories of my friends Lani, Angella or Ann, who are survivors, bloggers, and advocates (and Ann at this time is facing a recurrance)
Seeing a pink ribbon everywhere doesn't diminish my battle. It only fuels my fire to advocate for ALL CANCERS even more. I maintained a positive outlook while battling cancer and depression at the same time. I guess I just prefer to live my life positively, even while staring in the face of my own mortality.
No survivor I have ever heard say cancer is fun.
We all know it sucks.
Wrap that up in a pink ribbon.
Mel is the producer of The Vic McCarty Show. Listen live Monday~Friday 10am-noon eastern on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com. Available on demand and also available on Itunes.
Paraphrasing, she said that the pink ribbon was on everything and it promoted "awareness."
Then she said this,
"The experience of actual women with cancer, women like Rollin, Black, Ford and Rockefeller — women like me — got lost."
Uh what?
So I put on a Save the Tatas shirt or a Project boobies that takes away from your experience with cancer?
She says "Sassy retail campaigns have sprung up everywhere, purporting to “support the cause.”
Ok so as a writer shouldn't you check facts?
In the photo for the blog I am PROUDLY wearing a projectboobies shirt for a tv interview, one that she was complaining about in the article to be sassy and purporting to "support the cause."
Sorry Ms. Orenstein, it does support the cause.
Have you heard of Kokolulu? A free retreat for cancer survivors in Hawaii. A portion of project boobies proceeds goes to fund the retreat. THE FREE RETREAT.
As for Save The TaTas, a company I am familiar with, a company who, whenever I ask for t shirts for a fundraiser or a group the owner Julie Fikse donates to me without question, has according to their website donated $535,000 towards ending breast cancer.
Sorry that diminishes your battle.
Sorry that Kris Carr, survivor and author of Crazy Sexy Cancer bothers you with her positive message.
Does it diminish the battle of the 52 year old survivor who asked my friend for a save the tatas shirt, knowing that she got it from me? Does it diminish the fact that the doctors didn't give her much time to live.
I say No.
Most of the breast cancer survivors I know are in their 20's and 30's so I would instead of wearing as you would want me to a “I ❤ My 72-Year-Old One-Boobied Granny t shirt instead of the tatas or projectboobies shirt I would wear my I ❤ My 27 yr old friend who is a college student and a young adult breast cancer survivor
Because I do.
And a pink ribbon on toilet paper doesn't diminish the battle or the stories of my friends Lani, Angella or Ann, who are survivors, bloggers, and advocates (and Ann at this time is facing a recurrance)
Seeing a pink ribbon everywhere doesn't diminish my battle. It only fuels my fire to advocate for ALL CANCERS even more. I maintained a positive outlook while battling cancer and depression at the same time. I guess I just prefer to live my life positively, even while staring in the face of my own mortality.
No survivor I have ever heard say cancer is fun.
We all know it sucks.
Wrap that up in a pink ribbon.
Mel is the producer of The Vic McCarty Show. Listen live Monday~Friday 10am-noon eastern on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com. Available on demand and also available on Itunes.
Saturday, November 6, 2010
A Positive Ripple Effect
A while ago I was asked to write an article for a magazine. I can't even recall how long ago that was, I blame chemo brain for that. Some things I just can't retain. I try to get used to it but it is still frustrating as hell...
Its not like I submit things all the time. I don't. Most of the time I just write on my blog or submit to a few things here or there. So when I got the email from Brent from Empoweradio.com. I was like "oh yeah, sweet!!"
Imagine my surprise when I opened up the email link for the magazine and I saw my name on the cover.
Wow.
I am grateful to Kim and Cheryl the creators of the magazine to be included in the premiere issue.
I am honored and humbled to be on the cover.
I am glad there is a magazine that is spreading positive messages out there.
Check out A Positive Ripple Effect. My article is on page 34. Please check out the entire magazine, and share it with your friends.
Mel is the producer/co~host of The Vic McCarty Show. Listen live Monday-Friday 10am-noon eastern on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on Itunes.
Monday, October 25, 2010
OUTBREAK
It has been a rough week. I found out that one friends breast cancer returned (on Friday) went to another good friend's memorial service (on Saturday) Saturday night I was an emotional wreck. I considered not going into work on Sunday on my on air shift on 106KHQ, but thought better of it because, well for one, I need the money, and two, we are short staffed, and I didn't want to use just having a shitty weekend and possible mental breakdown as an excuse for not going to work,so yeah I have a puritan work ethic.
So I went to work on Sunday, so freaked out and feeling like I was coming mentally unglued, but I knew that I could pull off a good show. I can fake that no problem. I am a professional after all. But you know what? I didnt' have to. The music lifted up my spirits. I was the only one in the building for the majority of my day so I was dancing and singing at the top of my lungs, (thank god the Ustream wasn't on or else I would have never heard the end of that from my co workers.
We use facebook at work. One of the perks for working at a radio station. It is considered part of the job to post status updates, ask questions to the listeners and post where we will be making appearances, etc.
So as I was on facebook I came across a friend of mine's status and photo. It was a shrine for his wife. She had passed away from cancer a few weeks back. I had worked with him on Crossing Jordan, which seems like a lifetime ago, and we were casual facebook friends. I was stunned. This would make 3 instances of cancer that I saw that weekend.
So Monday rolled around. For a Monday it was going pretty well. Had a decent Vic McCarty show. Monday is always lunch at Buffalo Wild Wings, another perk of the job. Was having a pretty good day.
Then the local paper came.
I usually read through it pretty quickly. Not much news, small town.
Then I saw the obituary of someone that I worked with at another job a few short years back.
That made 4.
A good friend of mine said I should ponder and wonder why this happened. Its God's plan.
I am not going to ponder this.
Sometimes God's plan just plain sucks
You can label me a heretic. I go to church when I can. I pray. I do believe in God and do believe he does have a plan.
That doesn't mean I have to like it or agree with it or anything of the kind.
Like my friend Donald Wilhelm (who was the #2 in this blog) would say "It is what it is"
But dammit, fucking number 4
Seriously. Is it just me or is this ridiculous? How can there be so much cancer around and there is no "cure" or meds to prevent it. I am wondering what epidemologists say. You know the people who study these things?
I am sick of the outbreaks.
I am sick of reading about another friend or acquaintance getting a recurrance or a diagnosis.
I am sick of seeing the goddamn pink ribbon on my cat's friskies.
October is Breast cancer awareness month.
To me every month is cancer awareness month.
I think we are all aware there if cancer
Now how about we start fucking doing something about it?
Mel is the producer/co~host of The Vic McCarty Show. Listen live Monday~Friday 10am-noon eastern on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand now and also available on Itunes
Labels:
cancer awareness,
depression,
emotions,
God,
inspirational blogs,
recurrance,
remission,
survivor,
survivorship
Sunday, October 24, 2010
Saturday, October 16, 2010
Being Sick is Personal
Another Guest Blogger, Enjoy
If you’ve recently been diagnosed with cancer, or someone you know has, you’re about to
enter something you probably never knew existed: illness culture. As you can see by the
existence of this blog and the thousands of other cancer-specific sites on the Net, having an
illness is a huge part of people’s lives, and as such, it becomes a part of their self-identity.
In this way, illness culture resembles any other group with a defining characteristic in
common, just like people of a certain religion, or motorcycle enthusiasts, or a clique of
teenagers.
And while many find their particular illness culture to be supportive and helpful through
their struggle, some can become sick only to find that they don’t “fit in” in with the
main line of thinking or expression associated with their group. Barbara Ehrenreich, a
breast-cancer activist, discusses this issue in her great essay, “Welcome to Cancerland.”
In the essay, she confronts the predominant feelings and modes of dealing with cancer that
she encountered in breast cancer culture, and how she ultimately did not identify with
them. In her mind, breast cancer’s “cult of pink kitsch” was infantilizing and infuriatingly
positive.
Ehrenreich’s defining emotion about her cancer was anger—anger at the impersonal
treatment by her doctors, anger at drug companies for offering harsh treatments with little
benefits, and anger at her fellow breast cancer sufferers for being unwaveringly cheerful in
their battle with cancer.
My point here is not to knock keeping a positive outlook when ill. As reported in The Cancer
Warrior, staying positive can have great benefits for people fighting cancer. My point is
that, like any other type of groupthink, illness cultures can be single-minded, and those
who don’t fit into the current line of thinking can find themselves excluded and alone—this
on top of the fact that they are already facing a serious illness.
In the end, sickness is incredibly personal, and all types of reactions to illness and ways of
dealing with it should be actively welcomed. It’s important that those facing illness, and
their loved ones, recognize this and internalize it. While some may deal with cancer by
distracting themselves, others may need time to grieve over their situation—even to feel
sorry for themselves.
In America, self-pity is often regarded as the worst type of emotion; we live by the “pull
yourself up by the bootstraps” line of thinking. This aversion to self-pity and the endless
positivism seen in many illness cultures is unrealistic and doesn’t reflect the range of
emotions people feel when confronted with cancer. While staying positive is helpful, it’s
also okay to express emotions besides optimism.
If you’re dealing with cancer or supporting a loved one, remember that it is okay for sick
people to deal with their illness in their own way. Discouraging this is counterproductive
and even harmful.
In her essay, Ehrenreich recounts posting on a breast cancer forum about how fed up she
felt with her doctors, treatments, and insurance company. The responses to her negative
attitude were quick and judgmental: “I really dislike you having a bad attitude towards
all of this, but you do, and it’s not going to help you in the least,” said one commenter.
Support groups are supposed to be just that—supportive of one another’s struggle with
cancer, not dismissive or judgmental. People experience a range of emotions as they come
to deal with facing cancer on a daily basis. Realizing your own approach to illness and
accepting others’ is essential to creating an illness culture that helps, and doesn’t hurt, its
members.
About the guest blogger:
Joy Paley is a blogger for An Apple A Day and a writer specializing in medical coding for Guide
to Healthcare Schools.
Labels:
anxiety,
emotions,
healing,
health,
healthy,
hope,
livestrong,
personal,
survivorship,
therapy
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