Showing posts with label hope. Show all posts
Showing posts with label hope. Show all posts
Saturday, May 14, 2011
Drowning in your own thoughts
May is mental health awareness month. I find it ironic that I asked my doctor to up my anti depressant dosage during this month. Things have been in a downward spiral for about a month. I can't put my finger on what the trigger was for it. Just stress I guess.
I should be happy! I survived cancer.
Kicked its ass actually, and continue to kick it with my advocacy.
Then why am I so damned depressed?
Freedictionary defines depression as: Psychology A psychiatric disorder characterized by an inability to concentrate, insomnia, loss of appetite, anhedonia, feelings of extreme sadness, guilt, helplessness and hopelessness, and thoughts of death. Also called clinical depression
Great. I survived cancer now I have a psychiatric disorder.
It's not really that uncommon for cancer survivors to be depressed. I don't have exact numbers or graphs or charts but I know I am not the only one.
Although sometimes it feels that way.
I know I have been avoiding dealing with this for some time. I'm supposed to be strong right? I'm the one people lean on. A friend of mine told me that he doesn't know how I can deal with everything I deal with, that I must have armadillo skin.
The signs were all there. Avoidance, sadness, loss of interest etc. I chose to ignore them, or maybe I thought it was different this time.
I was wrong.
Its hard to explain to someone who doesn't deal with this what its like. It sucks because its not something you can control.
I tried to explain to a friend of mine about this. I said I was dealing with this depression, and that it wasn't going to be easy dealing with me, that I may get upset or angry for no reason. She said she understood.
But I could tell she really didn't.
Trying to explain to someone what this feels like is like shooting rubberbands at the stars. You can try but it wont reach. Unless you have know what this feels like its hard to explain.
Your head tells you one thing that your heart knows isn't true:
No one else feels like this, no one can help me, I feel lost.
Obviously none of those are true, but when you are within that moment, drowning in a sea of your own thoughts that is what it feels like.
Depression can handcuff you too. Makes it hard to do your job and live your life. Sometimes its a struggle just to make it through the day without wanting to just curl up in a ball and go to sleep, or feel like you are on pins and needles the whole day.
The passing of The Carcinista was a definitely a huge blow. I am not even sure how I got through that week at work.
So if you saw me the first week of May I wasn't myself.
Realizing that was hard.
Asking for help was harder.
I know I am taking steps in the right direction to get back on track, back to myself.
It could be a slow process, or a quick one.
Either way I am glad I know I am getting better.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Sunday, April 24, 2011
OMG Summit 2011 Cancertastic wrap up
Last weekend I was I was able to go to a cancer summit for young adult survivors. To be a young adult survivor you would have been diagnosed when you were age 15-40. The event was put on by my good friend Matt Zachary, founder of the I'm Too Young For This Foundation. I really didn't know what to expect. I haven't been to any events that focuses on young adult survivors and the specific issues that we deal with.
I have to say this:
It was a life changing experience.
Now I have been to many cancer events before, I have been invited to speak and participate at many.
But nothing had an impact on me like this.
Being in a room of over 350 young adult survivors was amazing. It didn't matter what type of cancer they had, how old they were. We all feel the same.
It was nice for one weekend to not have to try to dance around the cancer subject or try to explain to someone why I feel the way I feel.
I also met many of my online friends in real life. Many of the people who I have had on my podcast. It was awesome to meet in person Jonny Imerman, Tamika Felder, Patti Murillo-Casa and many friends who I had only spoken to via computer or text or phone.
Knowing all of these people put me totally at ease, and being in a room of 350 plus strangers could be daunting for anyone, but it wasn't. I think even if I had only met Matt I still would have been comfortable this element.
One of the great things was that almost all of the people speaking at the summit have the same mindset as I do:
You need to empower yourself as a patient.
You need to be your own advocate.
No matter how you feel, you are not alone.
I knew all of that was true. I just didn't realize how many others felt the same way.
If you are a young adult survivor this is the event to go to.
Prepare yourself now Vegas, because OMG summit 2012 will descend upon you.
Vegas will never be the same.
And for that I am grateful.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Sunday, March 13, 2011
The season
I play hockey. That is not new to any readers of this blog. I played on a coed league this year. Haven't played coed hockey since I lived in California, because of the expense, and I really wanted to try to get the women's hockey program of off the ground, but cancer had other plans.
So I really returned to the ice this year, in an organized hockey program. Last time I hit the ice before this was 3 years ago
3 years.
I found out about my cancer right before the season started in 2007. I remember telling my teammates, that I had cancer. That was hard. It was shocking, both to them and to me. At that point I didn't know what my course of treatment was going to be.
When I finally saw the surgeon and he told me I had to have a port put in I said, what I can't play hockey for two years? I actually thought that!! Isn't that crazy? I know I have written about this moment many times, but that tells you what an important role hockey has played in my life.
So I really didn't know what to expect when I was told about this coed league. Like I said before I had played in California. There were a few women here and there, I had 2 female teammates on my first team I played on. Some teams had no women on them. Some didn't like women playing hockey. There wasn't a sense of camaraderie within the league, only on our team.
The league manager does a draft. He tries to put different levels of abilities of players together. Its a C league, which means we have beginners and intermediates mostly, and some people who play very well interspersed within the teams. There are 4 teams in this league. I played on Hartman Law.
Now let me tell you this, in California, we had to buy our jerseys home and away, which was fine. There is nothing like getting your first jersey with your name on the back. Its an awesome feeling. This being a small town that I live in now that is not the case. They have sponsors for the teams. So they have jerseys already made for the team, kind of a bummer, but that's ok. I looked in the bin full of jerseys, found one that wasn't too big, it was #6.
I remember when I stepped onto the ice for the first game I felt shaky, it had after all been 3 years since I played, but it felt good.
On the ice everything makes sense, you can take all your aggressions, frustrations, anger, happiness every emotion you have and use it to play. Its a physical sport, and it can change in an instant with the bounce of the puck, a deflection or a pass. Its also a team sport. You can't win the game alone, you rely on your teammates.
We only played 9 games in the regular season, but I was grateful for every second on the ice. We won 4 games lost one and tied 4.
We were in first place.
I didn't score a point in the regular season, and I wanted to so bad. I had scored goals before when I played in California, and in the first game I played when I moved to Michigan, but I really wanted to score a goal or get an assist.
I didn't during the regular season.
We had a two game playoff. The first game was close. We won
Holy shit, my team is in the finals.
I have never been on a winning team before.
Until now.
I don't know what the time was in the first period but I scored the first goal in our final game.
It was a one timer.
All I can remember is seeing the puck on my stick then looking up and seeing it hit the back of the net.
My first goal after cancer. Awesome.
The game lasted 45 minutes. Just a blip in time when you consider how long I was in treatment for.
45 minutes, and we played hard.
And won.
The cool thing about this league, is the cameraderie. My team was happy I scored.
But so was everyone else.
Not everyone in the league knew of my battle with cancer, how hard I fought.
How hard I continue to fight during survivorship for myself.
How hard I fight for others, some I have met, some I never will.
The best thing about this season?
It has brought me closer to feeling like me.
And its about damn time...
Monday, February 28, 2011
The Long and Winding Road
Those of you who are frequent readers of this post know I like to exercise. Makes me feel good, it slowly gets me back to where I was before all of this. Before cancer, before side effects, before I knew so many medical terms one of my doctors asked me if I was in the medical industry, unfortunately, no I am just a student of my disease.
So I have decided to try to take up running again. I haven't run since high school when I ran cross country. I lettered in that. Still have the varsity jacket, and it still fits.
Running will definitely take me out of my comfort zone. I haven't run since high school because of my knees, and well, quite honestly running never really appealled to me, probably because of the growing pains I had with my knees. I only ran the one year for cross country, and after I lettered I guess I wasn't that interested in it.
In high school I wasn't much of an athlete. Didn't participate in team sports after cross country in 9th grade I believe. I even recall that many of my classmates were on diets, drinking diet coke and worrying about their weight. I never did that. Wasn't my thing.
Back to me deciding to run. I have my reservations wondering if I will enjoy it. I know it will be hard at first. Different than what I am used to doing. In the summer I love to ride my bike on the local bike path. Nothing like you and your bike and you and the serenity of nature.
I have a friend who is going to go running with me. Train me I guess. She is one of the pilates instructors from pilates midwest, the pilates studio where I did the pink ribbon program and where I currently take pilates classes. I don't even know if that is the right terminology. All I know is I enjoy going there and she enjoys kicking my butt.
So we did a 5k walk this past Saturday, my friend the pilates instructor, Jan and I walked,while the other pilates instructor ran. It was cold, about 20 degrees outside. It was good to get outside in the fresh air.
But of course we know, as cancer survivors, nothing is ever easy.
I have osteopenia. I need to do weight bearing exercises to keep the osteoporosis away. So I thought the walk would be a good addition to the pilates and hockey that I do currently.
The next day I noticed my neuropathy flaring up.
So let me get this straight.
I am trying to get back into shape with the help of one of my friends, and the walk causes a side effect?
The neuropathy doesn't really hurt. My foot is numb. Its more of an annoyance, but I would rather it not get back to the point of shooting pain going all the way up my leg to my knee.
I am hoping that running will cause a break through and it will go away permanently, and not have it return doing something that I want to do.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Labels:
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exercise,
healing,
health,
healthy,
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hope,
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pilates midwest,
pink ribbon program,
positivity,
stupid cancer,
survivor,
survivorship
Thursday, February 17, 2011
Getting back on track
As a cancer survivor I am used to the waiting game. Waiting for doc appointments, waiting for results from scans. Waiting, waiting, waiting. I wonder how much of my cancer experience I have spent waiting. Probably over half of it.
I am used to waiting for other people, but not for myself.
I am used to going all out all the time. When I had two jobs I would start my day at 5am as a server finish up around noon or 2pm, get to the radio station, do some voice tracking, go to the gym, then maybe head back to the radio station to work on a Tigers or a Red Wings game. A 5am-10pm day. I would do this about 2 or 3 times a week.
I am 3 years into my survivorship, and I am still waiting to be able to get back to that level of energy. Don't get me wrong, I do have energy. I still get up early, my work day ends around noon -2pm. I do pilates twice a week, its winter so I play hockey, but I am still not back to what I was before. I have to nap during the day to be able to do what I need to do.
Its hard waiting for me. Its harder not knowing if I will ever get back to where I was before.
I am close.
But not quite there.
This is one of the things they don't tell you about when you have cancer.
This is just one of the many charming aspects of survivorship that I have to deal with on a daily basis. Just one of the many thoughts that go through my head wondering when I will be back to me, or as close to it as I possibly can be with everything that I have been through.
There are some friends of mine that I haven't seen since I moved from California. Since I was diagnosed. Since I had cancer.
Sometimes I wonder how much I have changed and if they will even recognize me. The Me that they knew.
Its a scary thought to think that they wont.
Henry Wadsworth Longfellow said "All things come round to him who will but wait."
I hope he was right.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
I am used to waiting for other people, but not for myself.
I am used to going all out all the time. When I had two jobs I would start my day at 5am as a server finish up around noon or 2pm, get to the radio station, do some voice tracking, go to the gym, then maybe head back to the radio station to work on a Tigers or a Red Wings game. A 5am-10pm day. I would do this about 2 or 3 times a week.
I am 3 years into my survivorship, and I am still waiting to be able to get back to that level of energy. Don't get me wrong, I do have energy. I still get up early, my work day ends around noon -2pm. I do pilates twice a week, its winter so I play hockey, but I am still not back to what I was before. I have to nap during the day to be able to do what I need to do.
Its hard waiting for me. Its harder not knowing if I will ever get back to where I was before.
I am close.
But not quite there.
This is one of the things they don't tell you about when you have cancer.
This is just one of the many charming aspects of survivorship that I have to deal with on a daily basis. Just one of the many thoughts that go through my head wondering when I will be back to me, or as close to it as I possibly can be with everything that I have been through.
There are some friends of mine that I haven't seen since I moved from California. Since I was diagnosed. Since I had cancer.
Sometimes I wonder how much I have changed and if they will even recognize me. The Me that they knew.
Its a scary thought to think that they wont.
Henry Wadsworth Longfellow said "All things come round to him who will but wait."
I hope he was right.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Sunday, February 6, 2011
Happy Happy Joy Joy
I have been feeling great for quite some time now. I know it has a lot to do with playing hockey and pilates. Exercise raises endorphin levels. Endorphins make you feel good. We all know that.
I think a lot of it has to do with not only working out but knowing that I am getting back to my old self. Not that I can ever get back exactly to the way I was I know that. Sometimes that is a hard reality to face. But very close.
I still remember telling my hockey team I had cancer. I still remember what it feels like to be going through treatment and not being able to do anything. To be tired and weak. To feel shitty and feel like someone else.
Cancer takes so much from you. So does the chemo. It can strip away feeling like the person you were, to a person you don't even know. Makes everything about you feel like someone else, down to the very core of your soul. It took a few years of doing things that I love doing away from me. I When I was going through treatment I would look forward to these days and hope that they would come quickly. Now I look back and am glad that it is a distant light in the tunnel behind.
Like I said I am feeling good. I didn't realize how bad I felt until recently when I realized I felt so good.
I felt so bad for so long I didn't know the difference.
Now I feel so great I don't want it to end. I am hoping it wont.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Labels:
cancer advocacy,
emotions,
exercise,
healthy,
hockey,
hope,
positivity,
stupid cancer
Friday, January 7, 2011
Happy New Year
Recorded this video on New Years Eve. Why I do what I do.
Wednesday, December 15, 2010
Parts Whole
I started playing organized hockey again. I played a couple of times last year, pick up, but not organized, not like I was when I played in California in Burbank and Pasadena. There they would have an actual draft, where they would make you do drills and try to set up the teams evenly so there wasn't one team that was loaded with great players and the rest with average players like me.
Hockey means a lot to me. Its hard to explain why. Some things are just your passion, they get into your blood. I started playing in my mid 30s, wanted to exercise and didn't think I would go to the gym that much, so I used my tax refund to buy hockey gear at a store in Woodland Hills, CA. Out of all places to get into hockey, go figure I get into it in California. Never been one to follow the norm.
2007 was a hard year for me hockey wise. Not only did I find out my diagnosis on the last day of Red Wings Training camp but I had to tell my team that I had cancer and I couldn't play that year. That was hard. We had a beginning of the season party and I didn't tell anyone until then. Everyone was shocked.
I was hoping that I could play that year. That hope was dashed when I had my port put in. No contact sports. I would have that port in until 2009.
Two frickin years.
Two years of not playing hockey.
That was hard. Obviously going through chemo, radiation, surgeries and all the crap that went with it was hard, but not playing was hard.
Hockey is cathartic for me.
It is zen for me.
There is something about the stillness about getting on a freshly zambonied sheet of ice. Hearing your skate blades hit the ice for the first time. Skating a few times around the rink. Doing some stretches. Then getting into the game.
If everything is going crazy in the world the ice is the one place where everything makes sense. I think everyone has one of those places. For me it just happens to be a rink.
Not being able to skate and to play made me feel less like me. Trying other sports or activities to fill the void just didn't cut it.
Something was missing.
Something that was a part of me.
As I got dressed in the locker room with some of the ladies that I have played with before I felt a sense of peace that I haven't felt in a while.
Stepping out onto the ice I felt shaky. But skating is like riding a bike you never forget.
We did drills and did a draft for teams and then we scrimmaged. There were players on the ice that were better than me and some that were not.
As I sat on the bench between plays all I kept thinking was this:
I beat cancer I can do anything on the ice.
I'll keep you posted when I net my first hat trick.
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes
Friday, November 19, 2010
You Like Me, You Really Like Me!!!
Just got an email today from Amy from licensedpracticalnurse.com saying they liked my blog and is featuring it on their website as one of their top breast cancer blogs.
I am honored and humbled by The Cancer Warrior's inclusion in this list.
I hope this means that I am making a difference in cancer survivor's lives.
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes
Friday, October 29, 2010
Wow!!!!!! This blog was named on of the 15 Inspiring Breast Cancer blogs by Toponlinecolleges.com
Wow I am honored and humbled to be named among this amazing list of breast cancer survivors.
Thank you to everyone at Toponlinecolleges.com and thank you everyone for continuing to read about my cancer journey. I always have to thank Matt Zachary for letting me blog on stupid cancer.
Mel is the producer/cohost of The Vic McCarty Show. Listen live Monday-Friday 10am-noon eastern on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
Sunday, October 24, 2010
Thursday, October 21, 2010
Fearless????
I was planning on writing a blog about something else unrelated to this topic. This one gets every survivor.
I was having a great day. Just did a great radio interview. Had an awesome lunch with the crew from work. My internet still isnt' working at home so I decided to check facebook on my phone.
Thats when I saw the post
Bad News.
My cancer is back.
Nothing sends shock waves through you like hearing or reading that. Recurrance. The scariest word a survivor can hear.
I posted something on her wall. I told her I would help her out in any way I can. I can't help her out financially. Financially I am the Titanic and the iceberg is my debt. Cant seem to steer clear of it. I can help her emotionally. Listen to her. She is far away. I can't hug her, or be there in person for her. That makes me sad.
Quite frankly what she is going through scares the hell out of me.
A friend of mine recently called me fearless.
Now you know the one thing I fear the most.
Mel is the producer of The Vic McCarty Show. Listen Live Monday-Friday 10am-noon eastern on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com available on demand and also available on Itunes.
Saturday, October 16, 2010
Being Sick is Personal
Another Guest Blogger, Enjoy
If you’ve recently been diagnosed with cancer, or someone you know has, you’re about to
enter something you probably never knew existed: illness culture. As you can see by the
existence of this blog and the thousands of other cancer-specific sites on the Net, having an
illness is a huge part of people’s lives, and as such, it becomes a part of their self-identity.
In this way, illness culture resembles any other group with a defining characteristic in
common, just like people of a certain religion, or motorcycle enthusiasts, or a clique of
teenagers.
And while many find their particular illness culture to be supportive and helpful through
their struggle, some can become sick only to find that they don’t “fit in” in with the
main line of thinking or expression associated with their group. Barbara Ehrenreich, a
breast-cancer activist, discusses this issue in her great essay, “Welcome to Cancerland.”
In the essay, she confronts the predominant feelings and modes of dealing with cancer that
she encountered in breast cancer culture, and how she ultimately did not identify with
them. In her mind, breast cancer’s “cult of pink kitsch” was infantilizing and infuriatingly
positive.
Ehrenreich’s defining emotion about her cancer was anger—anger at the impersonal
treatment by her doctors, anger at drug companies for offering harsh treatments with little
benefits, and anger at her fellow breast cancer sufferers for being unwaveringly cheerful in
their battle with cancer.
My point here is not to knock keeping a positive outlook when ill. As reported in The Cancer
Warrior, staying positive can have great benefits for people fighting cancer. My point is
that, like any other type of groupthink, illness cultures can be single-minded, and those
who don’t fit into the current line of thinking can find themselves excluded and alone—this
on top of the fact that they are already facing a serious illness.
In the end, sickness is incredibly personal, and all types of reactions to illness and ways of
dealing with it should be actively welcomed. It’s important that those facing illness, and
their loved ones, recognize this and internalize it. While some may deal with cancer by
distracting themselves, others may need time to grieve over their situation—even to feel
sorry for themselves.
In America, self-pity is often regarded as the worst type of emotion; we live by the “pull
yourself up by the bootstraps” line of thinking. This aversion to self-pity and the endless
positivism seen in many illness cultures is unrealistic and doesn’t reflect the range of
emotions people feel when confronted with cancer. While staying positive is helpful, it’s
also okay to express emotions besides optimism.
If you’re dealing with cancer or supporting a loved one, remember that it is okay for sick
people to deal with their illness in their own way. Discouraging this is counterproductive
and even harmful.
In her essay, Ehrenreich recounts posting on a breast cancer forum about how fed up she
felt with her doctors, treatments, and insurance company. The responses to her negative
attitude were quick and judgmental: “I really dislike you having a bad attitude towards
all of this, but you do, and it’s not going to help you in the least,” said one commenter.
Support groups are supposed to be just that—supportive of one another’s struggle with
cancer, not dismissive or judgmental. People experience a range of emotions as they come
to deal with facing cancer on a daily basis. Realizing your own approach to illness and
accepting others’ is essential to creating an illness culture that helps, and doesn’t hurt, its
members.
About the guest blogger:
Joy Paley is a blogger for An Apple A Day and a writer specializing in medical coding for Guide
to Healthcare Schools.
Labels:
anxiety,
emotions,
healing,
health,
healthy,
hope,
livestrong,
personal,
survivorship,
therapy
Friday, October 8, 2010
Tug of war
I have been thinking about blogging about this for a while now.
Many things have happened recently that have made me want to put fingers to the keyboard. If you are a constant reader of this blog then you know a good friend of mine passed away from cancer recently. It has been hard to say the least. Add to that the mountain of debt that keeps getting larger, chemo brain, which frustrates the shit out of me, I don't knowing what I want to say but not having my brain fire synapses correctly, neuropathy, having to take x amount of pills at so and so times, etc, etc, etc.
Some days I feel like Sisyphus pushing the rock up the hill.
My mind is alway working constantly, either thinking about work, or advocacy, or how I can help someone out, hockey, whatever, it doesn't shut off. You could look at me and see me sitting calmly at work at the computer or talking on the air, my brain is constantly thinking, (yeah I know I just said I have chemo brain, comes and goes, like the mogwai in the movie Gremlins, don't get it wet, don't feed it after midnight, if only it was that easy to predict when it would kick in)
I battle constantly with this, all rolling around in my head like many tornadoes. Its frustrating. No wonder I don't know how to relax.
Yeah you read that right. I don't know how to relax
I can sit still but I can't relax. I can't really sleep either I can't sleep unless I am medicated, I have a mouthguard in at night so I don't grind the shit out of my teeth.
You know when people get a massage they get all relaxed and go to that happy place, maybe even fall asleep, I don't. I used to, but I don't know what happened. I have gotten some great massages here, and they have worked out knots and tension in my muscles. But I can't relax during the massage. I don't know why.
I did the reeling and healing midwest program for cancer survivors, a 2 day fly fishing retreat close to where I live. I know you are thinking what the hell does fly fishing have to do with cancer. Well let me tell you. It does help you relax, standing in the water there, with your guide, and nature. I figured out how to relax.
Unfortunately I can't take the stream and all of nature with me all the time. Yes the program is totally awesome, and I would recommend it in a heartbeat,and it helped me, but not being able to relax is something I am trying to overcome.
I found a brochure for a pilates program that a local studio was putting on. It was for breast cancer survivors, designed by a survivor. It was free, I called, they had to wait for enough participants before they could start the class.
So a few weeks later there I was in class with 3 other survivors, all at various stages of survivorship,all of us were well past surgery.
We were all there not knowing what to expect.
It was an eight week mat class, doing various exercises to strengthen the core and the muscles around where women would have had mastectomies, lumpectomies and lymph node removal.
Now I wouldn't have thought that something that may look like to the average person, a bunch of simple stretches would have any kind of impact on me, except for maybe getting a little toned.
But it did.
I have written before about my constant struggle with depression, yes I am on meds, but sometimes the mind can over come the meds, a tug of war in my head, dealing with the many mini tornadoes in my head and just survivorship of everyday.
I do maintain a positive mental attitude
But some days are harder than others.
Doing the pink ribbon pilates program with the other survivors helped me to find my comfort zone within my self. Lets face it having cancer and survivorship takes you completely way out of your comfort zone.
But with pilates it has forced me back in.
And helped me to relax...
A little more than before.
That is something I still need to work on, but I am slowly chipping away at that stone.
I found this quote and I will leave you with it:
Some of the greatest battles will be fought within the silent chambers of your own soul.
Ezra Taft Benson
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-Noon eastern on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on itunes.
Sunday, September 12, 2010
5 Ways Cancer Survivors Can Boost Their Health
Another Guest Blogger, Enjoy
It’s literally a trip to the fringes of hell and back, one that leaves you both physically and mentally drained. Surviving cancer is the equivalent of beating the devil by the skin of your teeth, and if you want to avoid the burning question of how much longer you can hold on and continue to be cancer-free, you need to take the bull by its horns and start boosting your health in small and large ways. It’s your second lease of life, so don’t let the chemo treatments or anything else get you down. Instead, look forward to each new day, take it as it comes, live for the day, and do all you can to live healthily by:
• Eating healthy food: Health professionals recommend that cancer survivors follow a healthy diet that includes lots of fresh fruits and vegetables in order to improve their health-related quality of life score, the test that determines how your health affects the quality of your life. The higher the score, the more quality there is in your life and vice versa. So make it a point to eat more fruits and vegetables and limit all that is unhealthy in the food category. That’s not to say that you need to become a vegetarian or eat only what’s healthy; rather, balance your meals and ensure that you’re getting the best nutrition possible.
• Exercising regularly: As a cancer survivor, you’re probably drained of all your physical and mental energy what with the stress and pain associated with the notion of cancer and the chemotherapy sessions. Exercise is perhaps the last thing on your mind right now, but there are advantages to working out that promise to boost the quality of your life and make you feel better physically and mentally. Start out with leisurely walks after consulting your doctor and then move on to something more active that invigorates and energizes you. Research has proved that hatha yoga helps boost energy levels of cancer survivors and also helps them sleep better without the aid of sleeping pills.
• Giving up addictions: The urge to throw caution to the winds and live life king-size is strong after you’ve survived a deadly disease like cancer, so you may probably go all out and smoke and/or drink like you never have before. But do remember that you’ve gone through a lot and put up with much pain and angst in order to survive. After driving away the disease, don’t welcome it back with open arms by smoking and drinking without a care in the world.
• Socializing with friends and family: The best medicine in the world is love and laughter, and these cannot be purchased at any drugstore in the world. When you’ve been given a second chance, boost your mental and physical health by surrounding yourself with loved ones and spending more time in their company. Relationships matter more than money or work, so get your priorities right and feel better about yourself.
• Staying positive: And finally, it’s important to look ahead and not behind at the road you’ve taken to come this far if you want to stay mentally healthy after beating cancer. Yes, it’s been a struggle, but by focusing on all the good things that lie ahead, it’s easy to move on and forge a good life for you, one that does not include the dreaded word cancer at all.
About the guest blogger:
Susan White regularly writes on the subject of radiology technician schools schools. She invites your questions, comments at her email address: susan.white33@gmail.com.
Labels:
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Sunday, August 29, 2010
Help Beat the Clock on Cervical Cancer
Another Guest Blogger Enjoy
In September 2009, I did a cervical cancer walk (Walk to beat the clock, organized by non-profit Tamika & Friends). At the walk, I found inspiration in seeing so many cervical cancer survivors telling their stories to help other women understand that through awareness and prevention, this disease can be entirely eliminated. So, I joined the movement and now I am the President of Tamika & Friends’ New York City Chapter. Tamika & Friends is a national non-profit organization dedicated to raising awareness about cervical cancer and its link to the Human Papilloma Virus (HPV). It was founded in 2005 by cervical cancer survivor and advocate Tamika Felder.
On September 25, Tamika & Friends is having their 3rd annual NYC Walk to Beat the Clock to help beat the clock on cervical cancer. We want to publicly celebrate women who have survived, remember those who have lost their battle, support those who fight cervical cancer today and educate women on how to prevent a cervical cancer diagnosis all together!
Cervical Cancer is almost 100% preventable, yet 11 women die each day from this disease. I do not want any other woman to go through what I did and become another statistic. I am committed to the eradication of cervical cancer along with Tamika & Friends.
Patti Murillo-Casa
Cervical Cancer Survivor
President, NYC Chapter, Tamika & Friends
Friday, August 6, 2010
Done
I wish that is what they would stamp on my cancer chart. DONE. As if you could just stamp something and have it be so like "top secret" like on NCIS or "case closed," like the CIA does. Sadly that is not the case. I don't think you can ever be done with cancer. Even in remission or not having it for many years, there is always that scanxiety, with every blood test, or scan, or even phone call.
September 18th will be my 3 year cancerversary. Still can't believe it has been 3 years.
Certain things I remember like they were yesterday. Other stuff is just a giant chemoblur. I remember when I was told, obviously, when the surgeon told me my options, when the oncologist said ok we can start chemo next week, I thought, what, already holy shit, give me more than 7 days after I get my port in to process this craziness.
My friends told me that it would be over before I knew it. I didn't believe them at the time.
This is going to take forever I thought HOW MANY MONTHS WILL I HAVE THIS GODDAMN PORT IN? How long will I be going through chemo and herceptin, and I have to reschedule my life around an afternoon radiation appointment? Really?
My friend was right. Although it didn't seem like it it did go by fast. Now I watch other people go through similar situations that I did, chemo, surgery radiation, and I see the anger and frustrations in their posts. I know how they feel, I felt that way too.
Its hard to explain to my friends that soon this will be a distant memory, that this wont last forever, but when you are in the moment, surrounded by cancer, time stands still.
I will continue to advocate, continue to speak about patient empowerment, continue to share my story, continue to blog.
Until there is a cure.
Only then will I be Done.
Mel is the producer/co-host of The Vic McCarty Show. Listen live Monday-Friday 10am-noon on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on Itunes
Sunday, July 25, 2010
Empowerment Rally Wrap up..
WOW. So I still can't believe that I was asked to be a part of a panel for the Cancer Treatment Centers of America on social media and how to be an empowered patient. Even when I was there I was almost expecting a knock on the door from someone saying whoops, er, ah,we didn't mean to invite you, we made a mistake...
It was such an amazing experience to be a part of a panel, and humbling to be asked. I spent the day with four other survivors, Joe Bacal, Lani Horn, Jody Schoeger and Matt Zachary. This was the first time I had met these survivors in real life, otherwise we have just communicated via the virtual world, texting or by phone. Matt Zachary I have known the longest. I started blogging on his stupid cancer blog and owe him a lot because of that. Meeting everyone and listening to their experiences was just so awesome.
We met the pr group to go over the ins and outs of the rally, toured the hospital, which didn't feel like a hospital, learned about how the hospital was founded, and went on what they called "Hope Rounds" before the rally.
Hope rounds were my favorite. That is where we walked around the hospital and met other survivors going through treatment, for most CTCA is their last resort, most have already been told you have 6 months to live (so they are stage 3 & 4 survivors), get your affairs in order, or have been misdiagnosed. Meeting these people and having them share their stories was incredible. Telling them about my story gave them a little more hope, at least that is what I think. I do hope I made an impact on at least one of the people I shared my story with.
The rally lasted an hour, all 5 of us were asked various questions pertaining to our treatment, doctors, survivorship etc. It could have lasted all day. We each have so much to share, so much to teach, so much to learn.
I posted pictures on facebook of the rally and tweeted about it. Several people called me a hero, and said they were proud of what I do. That makes me a little uncomfortable.
I don't consider myself a hero. I just do what needs to be done.
Mel is the producer/co~host of The Vic McCarty Show. Listen live 10am-noon Monday-Friday on wmktthetalkstation.
Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on itunes.
Wednesday, June 23, 2010
Sun Safety, Sunscreens & Cancer
By Keith I. Block, M.D.,
Author of Life Over Cancer: The Block Center Program for Integrative Cancer Treatment
On one hand, we've all been warned of the dangers that lurk behind those healthy-looking tans; most notably, an increased risk of skin cancer and premature wrinkles. On the other hand, there is also reasonable evidence that sun exposure does not induce melanoma, the deadliest form of skin cancer. In fact, there are several studies that demonstrate sun exposure can actually protect us from cancer! To be specific, the exposure to UVB sun radiation has been shown to reduce the risk of 19 major types of cancer through the production of vitamin D!
So what's a bikini to do?!
I think it's important we all try to get 20 minutes of unprotected sun-to-skin exposure every day. This is essential for meeting our most basic needs for Vitamin D. Once this is taken care of, I recommend both physical protection; i.e., hats, clothing and umbrellas, as well as chemical protection, sunscreens. However, it must be mentioned that many sunscreens on the market today have come under fire not only due to inaccurate labeling -- a product states it has an SPF (Sun Protection Factor) of 50 and it's actually a 4 -- but many have been found to contain a host of controversial chemicals that include potential carcinogens, cancer promoters, free radical generators, and hormone disruptors. In addition, the use of sunscreen is known to reduce the production of Vitamin D in the body.
Tip: Try and get 20 minutes of unprotected sun exposure daily.
Recently, The Environmental Working Group (www.ewg.org), a non-profit organization with the mission of using the power of public information to protect public health and the environment, came out with a fairly disconcerting report about sunscreens. EWG researchers recommended only 39 of 500 (that's only 8 percent!) beach and sport sunscreens for this season. The reason? As the word got out that the higher the SPF the better, there was a surge among manufacturers misrepresenting that their products contained an SPF over 50. Additionally, there have been new disclosures addressing potentially hazardous ingredients. In particular, recent government data has linked the common sunscreen ingredient vitamin A to accelerated development of skin tumors and lesions.
According to EWG, the best sunscreen is a hat and a shirt. No worries about chemicals that will be absorbed through the skin, and no question about their effectiveness. But if you choose to wear a "teenie weenie yellow polka dotted bikini," or any clothing that provides only partial skin coverage, EWG suggests using sunscreens that provide broad-spectrum (UVA and UVB-sunburn) protection, as well as those that contain fewer hazardous chemicals. For a list of their recommendations, go to: http://www.ewg.org/
Tip: Make every effort to avoid burning your skin. There is sufficient data to know that sun burns cause serious, long-term damage.
In an effort to make a wise decision regarding which sunscreen to purchase, many consumers look for The Skin Cancer Foundation's "seal of approval." However, this shouldn't be the sole criteria you use to make a purchasing decision. According to the EWG, The Skin Cancer Foundation (SCF) lends its logo to hundreds of sun protection products that have not necessarily been thoroughly scrutinized.
My Advice:
Get 20 minutes of unprotected sun exposure daily. Even on cloudy days, you can still get up to 80% UV rays and boost your production of vitamin D.
Make every effort to avoid sunburns. Be particularly cautious during mid-day sun exposure or near water where reflections can increase exposure and risk of burns. This can lead to skin damage and injury. Extensive research demonstrates that sunburns -- and particularly repeated burns -- cause serious, long-term damage.
Cover up! The use of hats, shirts and umbrellas offer safe and effective protection from the sun.
Buyer beware. Before purchasing a sunscreen, consult with a website such as www.ewg.org to ensure you are purchasing a product that is both safe and effective.
© 2010 Keith I. Block, M.D., author of Life Over Cancer: The Block Center Program for Integrative Cancer Treatment
Author Bio:
Keith I. Block, M.D. is Director of Integrative Medical Education at the University of Illinois College of Medicine; Medical Director of the Block Center for Integrative Cancer Treatment in Evanston, Illinois; and founder and Scientific Director of the nonprofit Institute for Integrative Cancer Research and Education. He is also editor in chief of the peer-reviewed professional journal Integrative Cancer Therapies and a member of the National Cancer Institute's Physician Data Query Complementary and Alternative Medicine (CAM) Editorial Board.
For more information, please visit www.lifeovercancer.com and www.blockmd.com. Become a fan of Life Over Cancer and the Block Center for Integrative Cancer Treatment on Facebook.
Saturday, June 19, 2010
Help save the life of Mandi Schwartz, a Yale Hockey player battling Leukemia
For more information about Mandi visit http://www.becomemandishero.org
YOU can help save her life
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