Sunday, January 10, 2010
The Return
Most people don't understand why I play hockey. It is mostly a guys sport. When I tell people I play they just give me "that look" you know the one, oh right YOU play hockey, you must get in a lot of fights on the ice. I never have, actually I am rather mellow, besides, we all have to work the next morning so..
I got started playing hockey because of a vendor of mine in Los Angeles. He gave me free tickets to see the Kings play at Staples Center. I was immediately hooked. I was looking to get in shape and I figured if I learned how to skate and bought all the equipment I would have no choice but to play. Hockey is an expensive sport.
I started playing co-ed hockey in Burbank, CA. Burbank Bruins. There were two other girls on the team.While we had fun, our team was in last place. Did I mention the other two girls just started playing too? I had so much fun. I still have the puck from my first goal I scored. Somehow I ended up on my ass perpendicular to the goal. I looked over and it just barely crossed the line. I was stoked. We lost the game, but I still remember that moment.
Cancer took a lot from me. Playing hockey today gave me some of that back.
I am tired, I am sore, my muscles ache. But I haven't felt this good in a long time
Mel is the producer/co-host of The Vic McCarty Show Monday~Friday 10am-Noon eastern standard time. Listen live on wmktthetalkstation.com.
Check out my podcast on Empoweradio.com available on demand now
Wednesday, January 6, 2010
Keeping your Mind and Body Healthy
Another guest blog. Enjoy
Everyone knows the basics: Eat Right. Exercise often. Don’t walk through fields of radioactive dust, or dance in acid rain. The following 7 suggestions are great new ideas to keep your chin up, stay healthy and live life to the fullest.
1. Write. This isn’t writing an email to your boss. This is deep, soul searching and honest writing. When you face a stressful situation, particularly a difficult decision, write. Putting thoughts on paper helps you work it out, which reduces stress, thereby increasing your health.
2. Go to a comedy club, an improvisation group, or an Off-Broadway comedy. The laughter, with the socialization and environment will do your body and mind a world of good.
3. Go Shopping, but not for yourself. Instead, pick a friend. Think about them and where they are in life. Consider their needs and desires. Go out and buy them something amazing. Then give it to them anonymously. It will feel great, especially if you are asked to help figure out who it was.
4. Go Curling. Curling is a crazy sport, with strange and unusual rules. Not only is it entertaining, but it is also a great physical activity, and provides social interaction, too!
5. Restock your first aid kit. You never know when you’ll need another dozen alcohol pads and that giant knee bandage you used last summer. This allows you to take stock of where you are, and be more prepared in the future.
6. Dance. Whether it is a partner dance like ballroom or square dancing, or an individual dance like hip hop or belly dancing, these activities are physically amazing, and increase self esteem as well.
7. Make a list of 10 things you’ve always wanted to do. Set these as goals, and find ways to work toward them. Making and achieving goals is crucial to living happily.
About the guest blogger:
We've got everything you need to know about arthritis. But if there is a question unanswered, send us an email and we will answer your question to the best of our knowledge, or at least will give you the resources to help you reach your goal. We are a group of caregivers whose family members are suffering from arthritis. This condition is a very common disease and has caused much distress to their victims. Nearly 1 in 5 adults have some form of arthritis. That's 46 million Americans affected. Americans age 65 and over are most likely at risk, but two-thirds of the cases are under 65. Women are more at risk than men. Please help us spread the word for prevention.
matthewr.chan@yahoo.com
Mel is the producer/co-host of The Vic McCarty Show 10am-Noon Monday-Friday eastern standard time. Listen live on wmktthetalkstation.com
Check out my podcast The Cancer Warrior available on demand now on Empoweradio.com
Labels:
body,
cancer advocacy,
hope,
mind,
new normal,
remission,
spirit,
stupid cancer,
survivor,
survivorship
Wednesday, December 30, 2009
Goodbye Old Friend....
Peripheral neuropathy.
Defined by dictionary.com as Function: noun : a disease or degenerative state (as polyneuropathy) of the peripheral nerves in which motor, sensory, or vasomotornerve fibers may be affected and which is marked by muscle weakness and atrophy, pain, and numbness
You know what it feels like when your foot falls asleep? Well imagine that intensified. Lucky me my friendship with neuropathy began after chemo ended. I know I have written about it before, but really? After I am done with the toxic chemicals being injected into me I get a side effect. Great. Thanks for that. A little bonus I wasn't expecting.
I started chemo on November 12th 2007 and finished up with (herceptin) treatment on December 29, 2008. I finished my chemo some time in April of 2008, I have the exact date in an old cell phone of mine,( have to get those milestone dates out of that phone before it gets tossed) My neuropathy started soon after that.
April 2008, and it just ended. Or at least I hope. I haven't had it in a couple of weeks. So I guess it is gone.
December 2009~so that means my neuropathy, that tingling annoying pain sock, which was so painful at first that it was almost too much to bear, that tingling I got used to having, when I went to bed at night it would, if I was on my feet for a long period of time, would crawl up my leg up to my knee like spider creeping up its web, that after a while it was more of a nuisance that anything else, lasted longer than my treatment. Longer than all of my treatments combined, including surgery, chemo, herceptin, and radiation.
My treatment lasted 14 months. My neuropathy lasted 20.
I almost don't want to post this blog, as if posting it will make it come back.
Ha ha but I am posting it anyway {gulp}
Mel is the producer/co-host of The Vic McCarty Show Monday~Friday 10am-noon eastern standard time. Listen live on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com
Tuesday, December 29, 2009
The Chart
I have been talking to a lot of survivors for my podcast The Cancer Warrior on Empoweradio.com. It has made me think of a lot of things that have happened to me. I remember when I was diagnosed I actually thought to myself "Well they must have someone else's chart." Yeah right. I live in a town of about 8 thousand people. My last name is Majoros. I am the only Majoros in the phone book. Pretty sure it was my diagnosis, unfortunately. I recall being really pissed at my doctor for not telling me what kind of breast cancer I had (the ultrasound tech told me which I guess is a real no-no) at that time my chart was only a couple of pages. She showed me that she didn't have the info, flipping between the 5 pages in my chart. Now its the size of a small book, the Gutenberg Bible of me. Whenever I go to the doctor I look at my chart and wish it was much smaller, and that chart is only for 2 years.
I was talking to another breast cancer survivor about her treatment, which was similar to mine, and we were discussing our side effects and medications. Its kind of funny to think about it like we were discussing parts of a recipe, ok if you add zofran to your benadryl whisk lightly with herceptin, sleep for an hour, then repeat every three weeks you will feel better!! We talked about hair loss, which I am still in awe of people who will go out in public with a bald head. Those who know me know I am not that shy, but when it came to that I was.
We were talking about how taboo it used to be to even say the word cancer, it was spoken of in hushed tones. Like you would say the whole sentence, then whisper the word cancer, as if to even speak it would bring it out like Beetlejuice.
Now many of my survivor friends shout it from the rooftops, well the modern version of it anyway, with blogs and podcasts and facebook posts and tweets. We know what its like. We want everyone to know about it. We don't want anyone else to get it. I personally don't want to welcome another person to the club no one wants to join.
Someone I respect called me a brave woman. I still don't understand why. I was told I had cancer. I am kind of stubborn, I don't back down from a fight. If you play hockey against you know it doesn't matter if you are five foot six or six foot five, if you have the puck, and I want it I will go after it, I may not get it the first time, but dammit you will see me, you will hear me and you will remember me.
Mel is the producer/cohost of The Vic McCarty Show Monday -Friday 10am-noon eastern time. Listen live on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio. Available on demand now.
Monday, December 21, 2009
Win great Save the Tatas gear
Save the Tatas. I have written about them before. I have had the founder Julia Field Fikse on The Vic McCarty show. They have always been great with giveaways. Now I want to pass on the giveaways to you. I have the t-shirts, sweatshirt, and hoodie seen here as well as the magnets, bumper stickers and two key chains. All you have to do to get one is email me at thecancerwarrior@gmail.com You will have to pay for shipping, but that is a pretty good deal for a sweatshirt, t shirt or sticker. I will post winners here on my blog.
Mel is the producer/co-host of The Vic McCarty Show. Listen live Monday-Friday 10am-noon on www.wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now.
Friday, December 18, 2009
$3,000
The original title of Pretty Woman was $3,000. No this blog post isn't about that. Its about a genetic test that I am going to have. The photo is of the mutated BRCA gene. Many breast cancer survivors have this gene. It is a mutation of a gene that if you have it you have it and you have breast cancer you have a higher risk of having ovarian cancer. I haven't had the test yet. I called my oncologist to see if I have had it yet, and he said no. He said I would have remembered having it because it costs about $3,000. I thought, hahaha doc you haven't seen my medical bills, three grand is a drop in the bucket.
I have insurance, but it may not cover it. Will I get the test if it isn't covered? Yes. Why would I want to put myself deeper in the hole financially for a simple blood test? For one it would tell me if I am at a higher risk for other cancers. Having gone through chemo once is enough thanks. It was a long year going through treatment and I certainly don't want to do that again, and would do anything I can not to go through that again.
Mel is the producer/co-host of The Vic McCarty Show. Listen live Monday-Friday 10am-noon eastern standard time on www.wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now.
Tuesday, December 8, 2009
Ponytail
Its not a picture of my ponytail, mine isn't as long....yet.
Most cancer survivors remember dates very well, date of diagnosis, surgery dates, chemo dates, dates our lives changed forever and when we had to adjust to this new normal we call survivorship. One date that is difficult for me to forget is Nov 28. Not only is it my Mom's birthday, it is also the date I had my head shaved, because the Adryamicin/Cytoxan made my hair fall out. I still remember Sandy the nurse telling me I should get my head shaved because my hair would fall out in 2 weeks. Haha I remember thinking I could beat the odds of 99.99% of the chance of losing my hair. Good one.
Two weeks to the day of my first chemo, which was Nov 12, 2007 my hair started falling out. Nothing like taking a nice hot shower in the winter and having your long dark lockes of hair come out in clumps in the shower. A few days later I went in after hours to my salon La Dolce Vita in Petoskey and had my stylist Val shave my head. Doug, my fiance and my neighbor Stacey came along with me for moral support. I thought about having more people there, kind of a head shaving party, but it was hard enough to keep it together when my hair was falling out. My only regret of that night is that I didn't take pictures of the whole process. I think it would have made the long winter months without my hair and the little peach fuzz on my head more bearable.
I am not a vain person, as I have written before. I rarely, if ever wear makeup. Unless its a special occasion you will normally find me in shirts of sports teams, cancer organizations, bands or the like. Hair I think, as breasts do, define you as a woman in society. Not having any was really difficult. Glad I went through treatment during the winter time, so I didn't have to explain myself why I was bald.
Being bald, chemo and all that seems like so long ago, a mere two years. Just a drop in the bucket of time. I have actually had several haircuts and gotten my hair colored.
Now my hair is just long enough to put in a ponytail.
Life is pretty sweet isn't it?
Mel is the producer/co-host of The Vic McCarty Show. Listen live Monday-Friday 10am-Noon eastern standard time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now
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