Saturday, August 14, 2010

Preventing a Recurrence of Cancer

Another guest blogger.  Enjoy

According to the National Cancer Institute, there are over 12 million cancer survivors in the US today.  And that number is expected to grow, as the population ages, treatments improve, and tests find the disease earlier.  

Cancer survivors face a myriad of health challenges, not to mention the daunting fear the cancer will return.  However, once a patient is deemed "in remission," they are typically disconnected from care -- as well as any attending support -- and told to come back in three to six months where diagnostic scans or blood tests will determine if the cancer has returned.

We suggest a far more pro-active, empowered approach: a remission maintenance plan that offers cancer survivors a personalized program to regain control of their health, restore vitality and protect against the cancer returning. At the Block Center, once a patient has completed their treatment, we personally tailor a comprehensive Remission Maintenance program for them that includes: therapeutic nutrition, exercise, mind-spirit care, and anti-tumor therapies.

Understandably, after hearing that they are "in remission," patients may want to retreat psychologically to a "cancer- free" zone and never think about the disease again.  But this is why they shouldn't:  Cancer is as much a microscopic and molecular disease as it is a visible one. Thus, a patient in remission may still harbor malignant cells (ones that were resistant to chemotherapy or radiation, and therefore survived the attack phase). These cells unfortunately have the ability to show up with a vengeance, even when one least suspects. Not placing far greater emphasis on containing and addressing these cells from the get-go is a significant omission of mainstream treatment. But while preemptive treatment strategies may only exist in integrative clinics, when it comes to the diagnostic side, a new technology has begun demonstrating the relevance of these virulent escape cells.

Enter CTCs (circulating tumor cells)! Over a decade ago, the Block Center was one of a few that were performing bone marrow biopsies to evaluate for malignant cells in both the marrow and in circulation. It took several years, but eventually this evolving diagnostic technology made it into conventional care. While easier to perform today and more reliable as well, we continue to use this in our clinic. This technology allows us and others the ability to measure in our patients the number of these detached cells circulating freely from the main cancer mass.  Though not yet approved for all cancer, research studies have shown that an increase of these cells is prognostic of a patient's survival.

For instance, a CTC count may be a better prognostic indicator for survival among prostate cancer patients than a PSA level -- the test used presently to determine and follow the course of prostate cancer growth.

By comparing the levels of CTC in 37 men with metastatic prostate cancer, researchers at Thomas Jefferson University found that for the men with 5 CTCs or more, the median overall survival was only 8.4 months. Whereas, if these men were found to have less than 5 CTCs, the median survival was 48 months! 

The relevance of CTCs is also relevant to other cancers. For instance, CTCs were measured in 151 women with metastatic breast cancer. The MD Anderson Cancer Center's researchers found that those patients with 5 or more CTCs had a median survival of only 13 months, whereas those with less 5 survived over 29 months!

Controlling, preventing or overcoming these detached and disseminating cells is possibly the biggest conundrum facing cancer scientists. While these cells are generally addressed during treatment, the first steps of recurrence prevention should start with strategies to counter the survival of these residual cells and inhibiting their potential proliferation. In fact, CTCs that have gone through the onslaught of treatment and have nonetheless survived have the potential to evolve into more aggressive clones encouraging a more virulent malignancy. So what to do?

Aggressive Monitoring


We recommend regular monitoring of patients' status with lab tests and imaging to detect early signs of disrupted biochemistry or a recurrence of disease, especially in the year or two after remission.

Being "diagnostically aggressive" may allow us to be less invasive therapeutically. In the first years after remission, therefore, we recommend:
  • Clinical visits with your oncologist, at least every three to four months in the first and second year and every six months for the next several years
  • Scans and blood tests of tumor markers every three months.
  • Complete blood count and chemistry test every three months.
  • Nutrition status, including weight changes, body composition, and albumin levels, every three months.
  • Internal terrain monitoring, every three to six months for the terrain factors that are most problematic.
While monitoring, there is no reason to wait anxiously for the other shoe to drop.  So immediately implement a full integrative program.
  • Make sound dietary changes toward adherence of a whole foods diet.  Reduction in dietary fat has already been shown to cut recurrences in different cancers. Controlling refined flour, sugar and junk food is a necessary step to avoid the recurrence risk of elevated blood glucose and spiking insulin levels.
  • Introduce aerobics, strength and flexibility training into your daily schedule. Yoga, pilates, chi gong or any number of fitness approaches is an essential step towards recurrence prevention. Considerable research supports that risk, response, recurrence and outcomes are tied to physical care.
  • Mitigate stress through progressive relaxation, meditation, or simply easing the load on an excessive work schedule. Elevated cortisol levels are associated with poorer outcomes in breast cancer patients. So do what it takes to transform less healthy patterns.
  • Get rest and adequate sleep. The more active you are in the daytime, the better you'll sleep at night. Few of us get enough sleep and the adverse consequences to an otherwise health promoting, cancer inhibitory environment can be devastating.
© 2010 Keith I. Block, M.D., author of Life Over Cancer: The Block Center Program for Integrative Cancer Treatment
Author Bio
Keith I. Block, M.D. is Director of Integrative Medical Education at the University of Illinois College of Medicine; Medical Director of the Block Center for Integrative Cancer Treatment in Evanston, Illinois; and founder and Scientific Director of the nonprofit Institute for Integrative Cancer Research and Education. He is also editor in chief of the peer-reviewed professional journal Integrative Cancer Therapies and a member of the National Cancer Institute's Physician Data Query Complementary and Alternative Medicine (CAM) Editorial Board.

For more information, please visit www.lifeovercancer.com and www.blockmd.com. Become a fan of Life Over Cancer and the Block Center for Integrative Cancer Treatment on Facebook.

Friday, August 6, 2010

Done




I wish that is what they would stamp on my cancer chart. DONE. As if you could just stamp something and have it be so like "top secret"  like on NCIS or "case closed," like the CIA does. Sadly that is not the case. I don't think you can ever be done with cancer. Even in remission or not having it for many years, there is always that scanxiety, with every blood test, or scan, or even phone call.

September 18th will be my 3 year cancerversary.  Still can't believe it has been 3 years.

Certain things I remember like they were yesterday.  Other stuff is just a giant chemoblur.  I remember when I was told, obviously, when the surgeon told me my options, when the oncologist said ok we can start chemo next week, I thought, what, already holy shit, give me more than 7 days after I get my port in to process this craziness.

My friends told me that it would be over before I knew it.  I didn't believe them at the time.

This is going to take forever I thought HOW MANY MONTHS WILL I HAVE THIS GODDAMN PORT IN?  How long will I be going through chemo and herceptin, and I have to reschedule my life around an afternoon radiation appointment?  Really?

My friend was right.  Although it didn't seem like it it did go by fast.  Now I watch other people go through similar situations that I did, chemo, surgery radiation, and I see the anger and frustrations in their posts.  I know how they feel, I felt that way too. 

Its hard to explain to my friends that soon this will be a distant memory, that this wont last forever, but when you are in the moment, surrounded by cancer, time stands still.

I will continue to advocate, continue to speak about patient empowerment, continue to share my story, continue to blog.

Until there is a cure.

Only then will I be Done.

Mel is the producer/co-host of The Vic McCarty Show.  Listen live Monday-Friday 10am-noon on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on Itunes

Wednesday, July 28, 2010

Support For Survivors: Four Practical Ways to Support Your Loved One’s Struggle Against Cancer

 Another guest blogger.  Enjoy
A cancer diagnosis can be a very isolating experience. In hopes of sparing themselves the grief of a drawn-out “goodbye”, friends and family have theunfortunate tendency to distance themselves from their afflicted loved one.  Others distance themselves because they simply don’t know what to do to help.  Here are four ways for family and friends to support their loved one, and to lend a helping hand when it’s needed the most:

1. Volunteer to perform a simple, helpful, task and follow through.

Something as simple as providing one home cooked meal a week can make a huge difference in the lives of a cancer-stricken patient and their immediate family. Make sure to ask what would make their day-to-day life easier. Some families, for instance, might benefit more from having childcare two hours a week than from having a meal delivered. Use your imagination and feedback from the family to determine how to best contribute.

2. Coordinate efforts to obtain community financial assistance.
Cancer has a way of draining family finances, whether through an interrupted work schedule or due to insufficient medical coverage. There are numerous local and national organizations that provide money and services to individuals who have cancer. Some will even help cover the cost of car payments, rent, and other
expenses.

3. Suggest support groups for cancer patients and their families.
Your loved one isn’t the only one fighting cancer. Some people take comfort inknowing that others have  fought cancer and won. Others simply don’t want tofeel like they’re the only ones targeted by the disease. Family members will find these resources useful, as the role of caretaker can often be thankless and tiring.

4. No matter how dire the situation might become, don’t disappear.
Whatever you decide to do, don’t end your relationship with your friend or family member. No matter how powerless you might feel to change the situation, it will only be made that much worse if you contribute to the isolation that commonly results from a cancer diagnosis. Having a friend who doesn’t always know what to say or what to do to help is better than having no friend at all.

Bio: Alexis Bonari is a freelance writer and blog junkie. She is currently a resident blogger at
http://www.collegescholarships.org/
In her spare time, she enjoys square-foot gardening, swimming, and
avoiding her laptop.

Monday, July 26, 2010

WENG-AM Tampa Morning Magazine interview with Richard Spedaliere 7/21/10

Radio interview on WENG -AM Tampa on the Morning Magazine with Richard Spedaliere.  Talking about all things Cancer Warrior!

Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on Itunes

Interview on KSPI-FM Stillwater Radio Oklahoma 7/19/10

Interviewed by Chris Greenert of Stillwater Radio on 7/19/10 talking about all things Cancer Warrior!!

Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on Itunes

Sunday, July 25, 2010

Empowerment Rally Wrap up..




WOW.  So I still can't believe that I was asked to be a part of a panel for the Cancer Treatment Centers of America on social media and how to be an empowered patient.  Even when I was there I was almost expecting a knock on the door from someone saying whoops, er, ah,we didn't mean to invite you, we made a mistake...

It was such an amazing experience to be a part of a panel, and humbling to be asked.  I spent the day with four other survivors, Joe Bacal, Lani Horn, Jody Schoeger and Matt Zachary.  This was the first time I had met these survivors in real life, otherwise we have just communicated via the virtual world, texting or by phone.  Matt Zachary I have known the longest.  I started blogging on his stupid cancer blog and owe him a lot because of that.  Meeting everyone and listening to their experiences was just so awesome.

We met the pr group to go over the ins and outs of the rally, toured the hospital, which didn't feel like a hospital, learned about how the hospital was founded, and went on what they called "Hope Rounds" before the rally.

Hope rounds were my favorite.  That is where we walked around the hospital and met other survivors going through treatment, for most CTCA is their last resort, most have already been told you have 6 months to live (so they are stage 3 & 4 survivors), get your affairs in order, or have been misdiagnosed.  Meeting these people and having them share their stories was incredible. Telling them about my story gave them a little more hope, at least that is what I think.  I do hope I made an impact on at least one of the people I shared my story with.


The rally lasted an hour, all 5 of us were asked various questions pertaining to our treatment, doctors, survivorship etc.  It could have lasted all day.  We each have so much to share, so much to teach, so much to learn. 


I posted pictures on facebook of the rally and tweeted  about it.  Several people called me a hero, and said they were proud of what I do.  That makes me a little uncomfortable.


I don't consider myself a hero.  I just do what needs to be done. 


Mel is the producer/co~host of The Vic McCarty Show.  Listen live 10am-noon Monday-Friday on wmktthetalkstation.

Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on itunes.