Help Chris Ryff

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Wednesday, September 5, 2012

Chris Ryff is a father of a 2 year old boy, a devoted husband, a much loved son, a loyal brother and a good friend to so many.  He is also fighting a battle against stage IV breast cancer in which time is not on his side.  Chris has identified a potentially life saving treatment called Personalized Gene Targeted Therapy at the Burzynski Clinic in Texas, which he believes is his best option at this stage of the disease.  We estimate that the cost of treatments, travel to the clinic and lost wages during this time could be around $60,000. 

We have created this page in an effort to chip away at these costs so Chris can focus on beating this disease. Please give generously and forward to others and ask that they give too.  

You can see a video of Chris and his family here during a recent photo shoot

Here is the link to the wepay page we've set up to donate for Chris and his family.

 -or-
To contribute by check, please make check out to exactly: William C. Ryff
And mail to:
RCF
Post Office Box #834
Ridgefield, CT 06877

Pay it forward.  Because it rocks....

Beyond a Reasonable Doubt

Today Lance Armstrong stepped down as chairman of Livestrong. I am deeply saddened by this.  He did so so Livestrong wouldn't be put in the middle of the USADA's allegations of Lance doping during 1999-2005. 

Nike, Radio Shack and Anheuser-Busch dropped their endorsement deals with Armstrong.

 Nike dropped  their endorsement deal because of "seemingly insurmountable evidence"

Controversy over doping.

Does it seem impossible that one man is telling the truth and many others are not?

It happens.

Does it seem impossible that one man can win 7 Tour De France without doping?

It happened

It used to be that a handshake and someone's word were all that you needed.

Isn't it innocent until proven guilty?

 Not guilty until proven innocent.

Let me tell you something about cancer survivors, at least my experience.

There are times during treatment when you think you will always feel sick

That you will never be well again

That you will never regain the ability to do what you used to do

That you will never, essentially be you again.

When you finally realize how far you have come you want to live life to the fullest, grab the brass ring, run that marathon that you never thought you would, skate harder and faster than you have, ride a bike faster because you know the value of today, and know there may not be a tomorrow.

I am not a professional athlete.  I play hockey in an adult amateur league and participate in runs like the Warrior dash. 

I have never won a professional sporting event, like the Tour, nor will I ever.

But I do know this:

If you are a cancer survivor once you get that exhilaration, that taste of life, that winning feeling, you want it to continue.

So what do you do if you are Lance Armstrong?

Win the Tour 6 more times.

Some people will say I am just supporting Lance because I am a cancer survivor.

That may be true, although I read his book It's Not About The Bike before I was diagnosed, I have never been a Livestrong Leader, participated in any Livestrong events, nor have been to the Livestrong headquarters in Austin.

I am a cynic yes, but I do believe the value of a man's word.  My Dad taught me that. 

So while your sponsors like Nike and Radio Shack may have left you,Lance, I, like many other survivors stand behind you.

Nike dropping sponsorship makes no sense to me, while they drop Lance, they re sign Michael Vick after his dogfighting charge and jailtime.

Doesn't make sense. 

Michael Vick was convicted.

There are just allegations against Lance Armstrong.

I guess some people and organizations get scared when a scandal hits close to home.

I don't back away from the people who have helped me, even if they don't realize they have. 

Backing people who have helped you even though they may not realize they have. 

Its the right thing to do.

Just Do It.

Check out my podcast The Cancer Warrior on Empoweradio.com
Also available on Itunes and on the podcasts app on the iphone

Looks can be deceiving

If you stopped by my house and saw this winter hat, you would think nothing of it.  I live in a cold climate, something anyone would wear during the winter. 

But this hat means a lot to me.

Cap
Chapeau
Toque
Hat

There are many names for it.

But this particular one is important.

I wore this when I lost my hair during chemo.

I knew when I got my head shaved I would probably be cold.  I usually have long hair and not having any well that was an abrupt change.  When I thought about what hat I should get to wear during the winter, to treatment, at home and when I slept I knew I wanted this one.

Under Armour.

I know its a good brand because I wear it when I play hockey.  I think I started wearing it before it was the normal thing to do, wear a dry wick material shirt under gear.  Bought my first shirt in El Segundo, California, where the Kings train, back when it was called HealthSouth, now its the Toyota Sport Center.

I wore the hat because it not only covered my head, but it reminded me I would get stronger.

Its funny what we cling onto when we go through something like cancer.  I imagine other people have trinkets and lucky stuffed animals that they cherish, that to other people look like a knick knack on a shelf, or just another stuffed bear.

But to survivors, these things can mean the world.

To me its a reminder of where I have been, and how far I have come.

Are you wondering do I still have my cap?

Damn right I do.

Check out my podcast The Cancer Warrior on Empoweradio.com
Also available on Itunes and on the podcasts app on the iphone

So You Have Cancer: 10 Things to Do Now, Even if You're Not Warren Buffett

 Another guest blogger, enjoy

Article originally printed in the Huffington Post.  Reprinted with permission.

Cancer is all over the news lately, thanks to early detection, celebrity patients, and those ubiquitous "Hey Cancer" ads. Though medical breakthroughs may be in the offing, the Big C still packs a psycho/spiritual wallop for the newly initiated, no matter what effective tax rate you pay. Here are 10 ways to beat back the cancer blues and be your own best friend:

1) Blame Canada -- Or Philip Morris. Or your stress-Nazi boss. Just don't blame yourself. Because even if it is your fault, right now it's not your fault. Nothing about cancer is your fault. Give yourself the Robin-Williams-in-Good-Will-Hunting Hug because it's not your fault. Once you're all better you can get down on yourself for smoking, or eating poorly, or internalizing your parent's guilt trips. For now, stay focused on getting better.

2) Divide and Conquer -- Learn survivor math. Say the median survival rate of your cancer is five years. Does that mean you will be dead in five years? No, math-slackers, it does not. The median is not the same as the average. A median rate (which is how survival rates are measured) means half the people with your condition will die before the median, most likely people WAY older and WAY more decrepit than you. Are you old and decrepit? Because if you're not then you can live another 10 or 20 or 50 years, depending on your age, even if the median is only five years. I used to hate math too, till I got cancer. Now it's kind of awesome.

3) Take Your Google and Stick it Up Your iPad -- Don't be a masochist and try to "learn" about your cancer on the Internet. Every other post you read will make you feel like you're gonna die any minute. Remember, just because people before you have died of cancer, or even your type of cancer, does NOT mean you will too. So take that, Google founder Larry Page, who once built an inkjet printer out of Lego (it's fine to search for that kind of useless dreck).

4) Trip Out, Dude -- Look yourself in the mirror and say: "I have cancer." It's weird the first time, like saying "I'm tripping on LSD" (not that I would know) -- but it helps to get used to the idea while you're all alone. You have cancer, you can survive, and sooner than you think you'll be looking in the mirror again going, "I don't have cancer anymore." That'll be weird too, but the good kind of weird. The magic mushroom kind of weird (not that I would know).

5) Get Into the Closet -- Keep the lights off. You are now a medical imaging device trying to see inside the total darkness of a human body. Sometimes you see things that aren't really there, like the CAT scan that "saw" potentially fatal tumors on my liver, till a sonogram "saw" they were only harmless cysts on my kidney. Whoops... glad I didn't jump off a bridge that week. So remember: trust but verify.

6) Think About Sex -- I'm a man, so I can't even get through a top 10 list without thinking about sex at least once. If sex is on your mind during these trying times, remember it's perfectly ethical to sidle up to a good-looking girl or guy and say: "You know, I wouldn't ordinarily be so bold, but I have cancer, so I was wondering if we could get naked together." At least you're not lying. Lying is unethical.

7) Channel Judge Judy -- Will your doctor keep probing and testing you because she thinks you have something else, or God forbid, something worse? Probably. Is he also making sure he doesn't get sued for misdiagnosis? Hmm... never thought of that. Doctors work in the real world, my friend. Their job is to be thorough, for many reasons, so keep a running list of each horror they look for but don't find. Not so you can sue anyone. Just to remind you not to be afraid of anything until you're absolutely sure you have it. And even then, just repeat step 3.

8) Tell it to the Hand -- No one knows what the hell to say to someone waylaid by cancer (my best friend asked if I owed him money -- at least it made me laugh). Informing loved ones is a HUGE burden, and you've got enough on your plate as is. Email is a solid way to keep your peeps up to date, and tell them what you need -- namely, their well-timed support. Trust me, you don't want all your loved ones calling for news every time you go to the doctor. With a group email, they can feel connected to you and also give you some much-needed space.

9) Turn On Your High Beams -- E.L. Doctorow once said this about writing, but it's true for surviving cancer as well: "It's like driving at night in the fog. You can only see as far as your headlights, but you can make the whole trip that way." So each day, just focus on getting to tomorrow. That's the only "long-term" goal you need to be concerned with till you hit remission.

10) Count to 28 Million, Babe -- That's how many cancer survivors there are worldwide. And with a little luck, you'll be next. Number 28 million and one. Just like Lance Armstrong and Sheryl Crow over there at the bar. Wait, they broke up, didn't they? "You know, I wouldn't ordinarily be so bold but..."

 

Michael Solomon is an award-winning filmmaker and the author of "Now It's Funny... How I Survived Cancer, Divorce and Other Looming Disasters."

Defining moments

Tony Scott.

You may not know the name but you know the movies he has directed.

Top Gun

Beverly Hills Cop II

Crimson Tide

True Romance

The latter movie was one of my favorites.

Now you know who he is.

If you were a child of the eighties like me those films were probably your favorites.  Who didn't want to be Maverick?  Or Kelly McGillis for that matter.  Almost everyone I knew did.

Defining moments.

When I worked in Hollywood I realized that the shows I worked on made lasting impressions on people I have never met, I was a small piece of those lasting impressions.  Those defining moments can last a lifetime.

Tony Scott.

Jumped off of a bridge in San Pedro, CA yesterday afternoon.

He left behind a wife.

He left behind twin sons.

Eyewitnesses say he jumped without hesitation off the bridge and police found a note in his car and in his office.

Why?

All of Hollywood is asking that question.

Why would a man who seemingly had everything take his own life?

Early reports stated he had just found out he had inoperable brain cancer.

While it has been reported that it not the case there is still much speculation as to why someone with everything, someone who has built up an amazing reputation, has given so many people defining moments of their lives take his own life.

Mental Illness?

Could that have been it?

Depression?

It's entirely possible.  The more I read about Tony Scott the more I am finding out he was a lot like the characters in his movies, the larger then life daredevils everyone wanted to be.

That was his public persona.

One can never know the silent suffering of others, especially if they are looked up to, such as Tony Scott was.

Of course I am speculating, I never met him.  I was not in his head.

People who have never had any form of mental illness don't understand how you can't just "snap out of it"

It is like any disease.  You can't snap out of diabetes, heart disease or cancer.  It has to be treated, whether you seek professional help, medication or just talk to a friend.

Even worse, you may get so depressed that you feel like you are alone, and there is no one in the world who can help you.

How do I know this?

I have been there.

I have been so depressed that I thought I was fooling my  co-workers, family, and friends.

Truth is I was only fooling myself.

There were times I was so depressed that I felt I would never be able to dig myself out of that hole.

Depression is a disease but it can be treated.

And you can get help before its too late.


Tony Scott directed amazing movies that audiences will enjoy for years to come.

Unfortunately his defining moment may be that tragic leap he took off of the Vincent Thomas Bridge in San Pedro, CA

Rest in Peace Tony Scott.  As long as there are people like me working hard to destigmatize mental illness your legacy will not be forgotten.

Sometimes the scariest places are within the depths of our own heart, mind and soul...

Check out my podcast The Cancer Warrior on Empoweradio.com.  Available on demand, on Itunes and on the Podcasts app on your iphone

Goodbye Nancy

I check facebook when I get home.  Tonight I got home late after a 14 hour day working my 2 jobs.  I saw the link from my friend Betsy De Parry.  Komen CEO Nancy Brinker to step down.

Wow.

It is late and I almost didn't want to make dinner before I wrote about this.

This is huge in the cancer world.


 I have written about Komen before in a prior blog post about what Susan Komen would say to her sister about the organization that was created in her name

Now Nancy stepped down.  The article says it was from backlash from Planned Parenthood funding, but I would like  to think it had to do with their pinkwashing of everything from cat treats to toilet paper.

There are many cancer survivors, including myself, who are sickened by seeing the pink ribbon on everything.  We don't need ribbons on Friskies, toilet paper or tennis balls.  We need cures, we need better treatments, we need better detection for the disease.

Somewhere Nancy Brinker lost her way.

The damage has been done, but nothing is irreparable.

We can fix this.

We have the technology.

Surely if JPL can send a rover to MARS our amazing cancer community can help the Komen Organization see the error of their ways.

Until then..

So long,
Farewell
Auf Widersehen
Au Revoir
Goodbye
Nancy.

Don't let the pink ribbon hit you on the ass on the way out....

Check out my podcast The Cancer Warrior on Empoweradio.com.  Available on demand, on Itunes and on the Podcasts app on your iphone

Milestone

Five
Cinco
Cinq
Fem
пять.

Five.;  In any language it is just a unit of measurement.  Days, weeks, seconds, moments.

Five.

For cancer survivors its the magic number.  5 years= remission.

I just had my last oncology visit before my 5 years of being cancer free, which I will celebrate at Red Wings training camp (if there is no lockout)

It is a milestone.

It has been a while since I have written anything.  Over a month.  Not that I haven't had anything to say, just have been busy.

Living life.

Milestones

Hockey

LA Kings

Home ice.

You never forget home ice, the first place you skated, the first game you saw.

I learned to skate late in life, at Pickwick Ice in Burbank, CA, my California home ice..

Staples Center

where I saw my first hockey game. It was awesome

Now if you read my blog you know I am a big fan, and a lot of good things have come surrounding sports, particularly hockey.

The LA Kings, when I first started to get into hockey were in a constant rebuilding year ( starting in 1997)

I still stood behind them though, even though they were awful, when I couldn't get anyone to go with me, because they were so bad or no one was as big of a hockey fan as me.

Even when I moved to Michigan, LA was still "my team"  Yes, I do love the Red Wings, their 2007-2008 stanley cup winning season helped me immensely spiritually and emotionally,  but you never forget your first love.

Milestones

The Kings were a long shot to win the Stanley cup this year.  Came in 8th place out of 8 teams in the western conference.

No one would have thought they could win.

Not even me.

But they did.

First time an 8th seed beat the top 3 teams in the division, and beat the eastern conference champions the NJ Devils.

Watching the Captain Dustin Brown hoist the Stanley Cup at Staples was a surreal moment.

Some days I still can't believe the improbable run.

Some days I can't believe all the things I went through with this damn disease.

But here I am.

On my 5th year of being cancer free

The Kings win the cup.

That is a pretty awesome milestone.


Check out my podcast The Cancer Warrior on Empoweradio.com
Also available on Itunes and on the podcasts app on your iphone